I started this blog for me. The intention was to give myself a place to "talk" about Marfan Syndrome and maybe one day have this blog reach others living with Marfan as well. But I have not taken very good care of it, have I? The last post was from 4 days into B's most recent surgery recovery. That seems so long ago already.
How about a quick "catch up"?
Me: Today is March 5 and I feel like the next few months, though the calendar is busy, are going to be good ones. Not without challenges (more on those later!) but good times are ahead of us!
B: Amazing recovery from his aortic valve replacement surgery in November. The scar is looking better each day and we are getting used to the sound of the mechanical valve. He is back at work full time; he actually started working again after 10 weeks at home.
G: She is about the have a birthday - I cannot believe she is 6 years old. No changes medically for her since the last appointment in Baltimore.
And so, I give this blog a fresh start. Starting tomorrow morning. We shall simply pick up there.
Showing posts with label History. Show all posts
Showing posts with label History. Show all posts
Friday, March 5, 2010
Wednesday, May 14, 2008
History of Us
I feel like I have to qualify myself to write this blog. I know its my blog and I dont really have to but it feels good to look back sometimes. To acknowledge what we have experienced and what we have survived. Its cliche but it does make us stronger.
In 2001, I met the most hysterical, supportive, nicest guy ever. His name was B. We hit it off immediately.
In 2002, B called me from work to tell me he was going to the hospital and he wasnt sure what was wrong. He just knew something was seriosuly not right with him. Thank God he made that call and that the ER doctor listened to the crazy girlfirend (that's me!) about Marfan Syndrome. After a CT scan, it was determined that B was in the midst of a descending aortic dissection. A short helicopter ride later, he was in the ICU at a fabulous hospital for 8 days. That was the first introduction I had to Marfan-related issues.
After getting married, we welcome G into our hearts and lives in 2004. She is the light of our lives and yes, the world that we live in does actually revolve around her. :)
Just this week, Monday to be exact, we took G to the eye doctor. For the past few months, I noticed her eye turning in sometimes. I had "lazy eye" as a kid so that is what I thought it was. Even with all the years of researching and preparing, we werent ready to hear the words "Dislocated lenses. Yes, G has Marfan Syndrome as well".
And here we are today.
In 2001, I met the most hysterical, supportive, nicest guy ever. His name was B. We hit it off immediately.
In 2002, B called me from work to tell me he was going to the hospital and he wasnt sure what was wrong. He just knew something was seriosuly not right with him. Thank God he made that call and that the ER doctor listened to the crazy girlfirend (that's me!) about Marfan Syndrome. After a CT scan, it was determined that B was in the midst of a descending aortic dissection. A short helicopter ride later, he was in the ICU at a fabulous hospital for 8 days. That was the first introduction I had to Marfan-related issues.
After getting married, we welcome G into our hearts and lives in 2004. She is the light of our lives and yes, the world that we live in does actually revolve around her. :)
Just this week, Monday to be exact, we took G to the eye doctor. For the past few months, I noticed her eye turning in sometimes. I had "lazy eye" as a kid so that is what I thought it was. Even with all the years of researching and preparing, we werent ready to hear the words "Dislocated lenses. Yes, G has Marfan Syndrome as well".
And here we are today.
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