A little over a year ago, we heard "slightly enlarged" and words like "rapid growth". Scary words when they are describing your 4 year old.
This year - normal. The doctor said normal!
G's aorta is normal size. The high side of normal but when you are a Marfan patient, anything that is normal is good!!! The medication is doing what it is supposed to be doing. During her growth spurt this past year, G's aorta grew but in proportion to her body. Doctor was happy and I was ready to do cartwheels down the hallways but there were several patients in the waiting room that probably wouldn't have appreciated my show.
Its not easy to manage a Marfan child but I am rested a little better at night knowing that the medicine we chose for her is working. For now. But that is all I can ask for.
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