Thursday, November 3, 2011

A cancellation? Yes, I will take it! UPDATED

G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it -- her hip cracks!

She has always had flat feet and her ankle joints are loose. But year after year during our visits to John Hopkins, we are told to simply watch it, that there will come a time when it needs to be treated but that we should wait to see what her body will do first.

Well, today is time. Well, tomorrow to be specific.

Today I called. Her pediatrician gave me the name of a great pediatric orthopedic doctor. I did some research and his resume is very impressive. So why was I SO surprised that his receptionist informed me of the 6-month waiting list at his office for new patients. But today I was lucky. Because tomorrow there is a clinic about 30-45 minutes from our house and there was one cancellation. Did I want it? OF COURSE!

Tonight, I will spend time printing out G's medical information and the hubby's too as a point of family reference when it comes to Marfan issues. I will also print out any related Marfan information that I may need at the appointment. I have no idea what to expect at the clinic. Or what to tell G to expect. What kind of treatments should I prepare for --- could it be as simple as custom insoles for her shoes? Braces on her ankles? Who knows. Guess we will find out tomorrow.

Update:  Yep, typical flat feet.  All joints have great flexibility and range of motion but are all tighly intact the way they should be.  Her hip cracking doesnt seem to actually be cracking but a tendon next to the hip joint that "cracks" against the joint when she moves her hip in a certain direction.  For now, we are trying out insoles in her shoes to see if that helps to alleviate some of the pain/discomfort in her feet.  A follow up in 6 months as well as adding an ortho appt to the annual Hopkins trip.

3 comments:

Zoie @ TouchstoneZ said...

I hope the appointment went well and that you were able to get a good provider. It sounds like you've gone in with a lot of strong information.

Noelle said...

OH...I hope everything went well!!! Your prayers for my little Emily are so appreciated!

Maya said...

How'd it go? J has an ortho consult for possible AFOs (a type of ankle brace) next week.