Being Prepared

Preparation is key to living our lives with Marfan Syndrome.  Sure, there are so many things you cant plan for but having the right doctors, asking the right questions, gathering the information to manage the syndrome makes life a little easier for us. 

We have known for years that Hubby would have to have Aortic Root surgery - its one of the unfortunate realities of having Marfan Syndrome.  We just weren't ready to hear that it was time.  Yesterday, we met the surgeon.  We heard about the procedure and about valves.  We talked about all the "what ifs".  And we made decisions. 

Now we wait for the call from the scheduler with the surgery date. 

A month ago, when we found out that the surgery needed to be done now (not in 2 years like we thought), I was not prepared.  The last few weeks, I have been sad, angry, frustarated, stressed, and depressed.   And Hubby has too.  Its not a fun way to exist.  Through all the research we did on our own, all the statistics we learned and all the forum messages we read from past patients, we walked into that appointment yesterday knowing what was happening.

And that made it better.  And it will make the next few weeks of surgery prep better.  Because being prepared makes the process just a little easier on us.